For professional
Project results will be shared through scientific publications, conference presentations, and dedicated sections on the ARTEMIS website. Educational tools for clinicians and registry professionals will also be made available to support knowledge transfer into practice.
ARTEMIS uses the Surveillance of Cerebral Palsy in Europe (SCPE) Reference and Training Manual (R&TM) as a theoretical foundation. The project not only relies on this reference but also aims to deepen and update it with new findings, especially concerning ataxic CP. The SCPE R&TM is publicly accessible for professionals on the SCPE website. In addition, ARTEMIS will develop educational tools to support standardized assessments and interdisciplinary care.
By harmonizing data collection and providing validated tools for ataxic cerebral palsy, ARTEMIS contributes to strengthening registry datasets. This facilitates more precise epidemiological monitoring, supports international comparability, and enhances long-term research on CP outcomes.
For families
ARTEMIS aims to harmonize assessment tools and provide targeted therapies to support your child’s development, increase their independence, and improve their quality of life.
Absolutely. Families are essential partners in this work. Their insights help us design more effective tools, ensure relevance to everyday needs, and promote truly family-centered approaches to care. If you are interested in getting involved in the project, you may contact your local association or reach out the project team through our website.
Yes. We are committed to sharing our findings in a clear and accessible way, using family-friendly materials available on our website.
You can stay up to date with the project by checking our news section or signing up for updates on our website. We’ll share news about our progress, upcoming events, and results as they become available.
We aim to provide materials and communications in local languages wherever feasible. You may also request translated information from your local ARTEMIS partner.
Yes. The “Fondation Paralysie Cerebrale”, France, serves as the designated Patient Advocacy Organization within the project. As a committed and active partner in the ARTEMIS initiative, the foundation plays a pivotal role in amplifying the voices of patients and their families, ensuring that their needs and perspectives are duly acknowledged and integrated throughout the project’s development.
A contact form is available on the website for any inquiries. You may also get in touch with your local clinical partner involved in the ARTEMIS project for further information or assistance.
Participation is subject to the involvement of local clinical centres in the project. If you are interested, please consult your healthcare provider or contact the project team via the website.